I found out I had Factor V after three DVT's and in 2004 I had as serious as it can get with PE's in both lungs. My heart and lungs have damage. I am on Coumadin for the rest of my life. My level of treatment is 3.5 to 4. I my level changes often and is hard to keep in those limits.

Old clots are coated and remain in place in the legd, causing vericose veins. Ted hose is a must! I would think the Dr. would have kept you on meds. If you are female and in child baring years this is nothing to go untreated.

There is a new drug called PRADAXA that is well worth looking into. I go to the VA for my treatment and new Medications are slower to get.

I think if a Gen. Practioner has delt with you need a Hemotologist to work with your Factor V. Hope this helps.

I'm a 44 year old healthy female. I developed two DVT's in my lower left calf. I was first treated with Coumadin, but have now been taking Lovenox injections twice daily. I also tested postitive for hetero Factor V. It has been five weeks, and I am not seeing the progress that doctors originally told me to expect. I have now been told that it's post phlebitic syndrome. My calf is red, swollen, and painful to walk.

I would like to hear experiences others of had with PPS, so I can best speed a recovery. I began wearing the compression hose. I am not yet ready to begin exercise, as walking is still a struggle.

Kristin, I am curious how you are progressing?